Parenting and Caring Collection: Carers & Medical Conditions
This guide showcases UCD Library books on aspects of stages of parenting and caring for parents
Mom's Cancer by Brian FiesEach year, approximately 1.5 million people in the United States and Canada are diagnosed with cancer. This is one family's story.Winner of the 2005 Eisner Award in the category of Best Digital Comic for the original Web version, Mom's Cancer is now available as a graphic novel. An honest, unflinching, and sometimes humorous look at the practical and emotional effect that serious illness can have on patients and their families, Mom's Cancer is a story of hope--uniquely told in words and illustrations.Brian Fies is a freelance journalist whose mother was diagnosed with lung cancer. As he and his two sisters struggled with the effects of her illness and her ongoing recovery from treatment, Brian processed the experience in his journal, which took the form of words and pictures.The story that came to be known as "Mom's Cancer" first gained notice on the internet. It was posted anonymously, with the intention of sharing information and insights gained from his family's experience. Thanks to the words and illustrations of Brian Fies, readers have already responded that they were surprised and gratified to realize that they weren't alone. Abrams ComicArts is proud to bring this story to a whole new audience.
Call Number: 362.196994240092FIE
Caring Through Cancer by Lara Woodward; Suzanna StokesSuzanna and Lara "met" in a support group for people caring for a loved one with cancer. They shared their highs and lows together with empathy with dollops of dark humour. When they started writing a book together they hadn't met in person but felt a deep connection and a shared desire to put their cancer experience to some positive purpose. Caring Through Cancer is a non-fiction narrative. Suzanna and Lara cared for their spouses, Mark and Nick throughout the time they had cancer. The book starts with the delayed diagnosis of their husbands, the shock that came with that and the frustrating delays until treatment plans were in place.It covers a large spectrum of what it is like to live with incurable cancer. From treatment and passing on the news to others, to home life and the responsibility of caring for a loved one through to their death. It is honest, often emotional, sometimes sad, sometimes uplifting and shows that you can live a life with cancer. A life with new norms, new appreciation and a different focus but life none the less. It also covers the early days of their lives without their husbands.50% of any profit made will be donated to our chosen cancer charity.
Call Number: 649.8STO
Dementia & Alzheimers Care
Alzheimer's Through the Stages by Melissa Valentine (Editor); Mary D. MollerCaring for Your Loved One (and Yourself) Through Alzheimer's Alzheimers books should help everyone involved through this incredibly difficult time. That's why Alzheimer's Through the Stages shows you what you can do for your loved one--and yourself--every step of the way. This book's detailed descriptions of all seven stages of the disease are both helpful and comforting. With each section divided into three parts--what to expect, what to say, and what to do--this is one of the easiest to use Alzheimers books for caregivers. Alzheimer's Through the Stages includes: A COMPLETE GUIDE--Go beyond other Alzheimers books as you learn what's happening and what you should do during all 7 stages of the disease. EASY-TO-USE ADVICE--Detailed guides and sample dialogues help you handle everything from doctor visits to mood swings--making this one of the most useful Alzheimers books. SELF-CARE FOR CAREGIVERS--Discover the importance of your own wellbeing and how taking care of yourself is critical to successful caregiving. Discover one of the only Alzheimers books that lets you concentrate on what matters most--caring for both your loved one and yourself.
Call Number: 616.8311MOL
Dementia the one stop guide by June AndrewsAcross the world, 44.4 million people live with dementia. Hundreds of millions of people are affected by the dementia of parents, partners, siblings or friends. And as much of the world struggles with an aging population, dementia is set to become ever more of a challenge for societies and individuals.
But still, most people who are diagnosed, or who are dealing with the diagnosis of a loved one, feel as though they are alone. Dementia: The One-Stop Guide aims to fill this gap, providing practical information and support for living with, or caring for, dementia.
With clear and sensible information about recognising symptoms, getting help, managing financially, staying at home, treatment, being a carer and staying positive, this guide will help those with dementia and their families to make sure that they can stay well and happy as long as possible
Call Number: 616.831AND
Finding the Light in Dementia by Jane M. Mullins; Carole Fawcett (Editor)'Finding the Light in Dementia: a guide for families, friends and caregivers' is the essential self help book that explains common changes that can occur in those living with dementia. By offering valuable approaches, tips and suggestions interspersed with individuals' stories, the reader can learn to care for and maintain a connection with their loved one (care partner). Whether you're a spouse, partner, daughter, son, sibling, friend or even a parent caring for a loved one living with dementia, this book is for you. Finding the Light in Dementia will help give you more confidence to care by: Supporting you through your partner's diagnosis of dementia Helping you understand what your partner is experiencing Teaching you ways to communicate and connect with each other Helping you make subtle changes to your home to help your partner feel safe and content Introducing practical and creative ways to stimulate memories to help with day to day living Showing you how to create lifestories together Suggesting ways to keep your partner interested and engaged in meaningful activities Providing tips for sleeping, eating and drinking Suggesting ways to help your partner with their appearance and dignity Showing you ways of overcoming the challenges of changing behaviour, reactions and responses Helping reduce the effects of hallucinations, delusions and misperceptions Suggesting ways for you to care for yourself Involving families and friends Giving advice when considering professional care at home and in residential care Knowing how tired and stressed you may feel, 'Finding the Light in Dementia' is written in bite sized chunks that makes it easy to follow. By giving you space to write down any points you would like to make and providing question sheets for you to refer to when speaking with your doctor and/or legal professionals you can make this your personal guide. When following the approaches in this book, you should find that your partner will feel more understood and you will become calmer thereby helping you both find a sense of connection and continue to live well.
Call Number: 616.831MUL
Dementia essentials how to guide a loved one through Alzheimer's or Dementia by Jan HallWhen a loved one has been diagnosed with dementia, many family members assume new roles as carers, helping their relative to remain safe, happy and as independent as possible.
Dementia Essentials is a practical, realistic and reassuring guide to help you and the person with dementia on the journey ahead. Written by a real carer with first-hand experience of the challenges dementia poses, the book is full of essential advice, personal insights and helpful strategies, including:
· Thorough explanations of dementia and Alzheimer’s
· Advice on medication and getting support from local health professionals
· Ideas for encouraging independence, confidence and activity while reducing anxiety, aggression and confusion
· Guidance on how to prepare for the future, including legal and financial decisions and choosing a care home
· Strategies for coping as a family carer, helping you to feel less alone and more empowered
Positive and practical, Dementia Essentials will help you provide and find the best possible care for the person you are supporting.
Call Number: 362.19683HAL
Everything You Need to Know about Parkinson's Disease by Lianna MarieEverything You Need to Know about Parkinson's - All in One Place! Written in plain, easy-to-understand language, this book teaches you everything you need to know to about Parkinson's Disease, without you guessing or searching endlessly for answers to your biggest questions. This book is the result of 25 years experience and research in living a life with Parkinson's Disease. It's chock-full of vital facts, helpful hints and critical information... all in one easy to read book. Here's some of what you're going to discover: Discover exactly what is Parkinson's Disease. What causes it? How fast does it progress? How to get correctly diagnosed in determining whether it's really Parkinson's disease. Is Parkinson's hereditary? Discover what the latest research shows about whether you should be concerned if your parent or close family ancestry had Parkinson's. 22 of the most common symptoms of Parkinson's Disease. Learn these symptoms so you won't be fooled by other 'look alikes'. What the latest research shows about the most effective ways to slow the progression of Parkinson's. The 5 Stages of Parkinson's and how to identify which stage you're at now. How Parkinson's can affect your life expectancy and whether people die from the disease. It's a lot less scary than you think! Why attending a Parkinson's support group meeting may NOT be the best move for someone who has just been diagnosed with the disease. This book isn't just for the newly diagnosed. Inside you'll learn: What you should know about Essential Tremor and how it's different from Parkinson's Disease. The role that age plays in getting Parkinson's and what you should know about Early Onset Parkinson's. Why anxiety and depression are common in Parkinson's patients and how to best alleviate these negative emotions. The relationship between Parkinson's and Alzheimer's Disease. The real cause of depression in Parkinson's patients whether it's caused by the disease or the side effects of the common medications. What you should know about stress and how this can negatively impact you. Learn 5 simple techniques you can use to alleviate stress and reduce these effects. What you should know about the common medications prescribed for Parkinson's patients and the common side effects and long-term effects of the drugs. Drugs you should avoid while on Parkinson's medication and those you should definitely tell your pharmacist about if you're using them. 12 Ways to reduce nausea, a common side effect of many Parkinson's Disease drugs. You'll find these tips too: 8 Techniques you can use in order to prevent "freezing". You'll learn a neat little trick discovered by accident that works very effectively. Learn how to know if you are getting the most out of your medicine. (How much "off" time is reasonable?) Common things you should avoid to help reduce your tremors. 11 Speech Therapy techniques you can use to improve your speech clarity. 18 Tips for making chewing and swallowing of food much easier (these will come in very handy!) 15 Tips for helping you to get a better night's sleep. 7 Main alternative treatments for Parkinson's Disease you should know exist. What you should know about the foods you should eat more of and those you should avoid like the plague. What you should know about getting financial help from your government and other agencies. Helpful gadgets for people with Parkinson's. And much more... Scroll up and get your and get your copy now.
Call Number: 616.833MAR
Parkinson's Treatment by Michael OkunInternationally renowned as both a neurologist and a leading researcher, Dr. Okun has been referred to as, "the voice of the Parkinson's disease patient." He has an international following on the National Parkinson Foundation's Ask the Doctor web-forum. His many books and internet blog posts are brimming with up-to date and extremely practical information. He has a talent for infusing his readers with positivity and optimism. In his current book, he unmasks the important secrets applicable to every Parkinson's disease patient. For some sufferers the secrets have translated into walking again, for others they have restored voices, and for many they have resulted in the lifting of a depression, anxiety and desperation cloud."There isn't any joking with Dr. Okun about the 10 Secrets for a Happier Life in Parkinson's disease. This book is a critical resource for Parkinson's disease patients and families from around the world who speak different languages, but suffer from very similar and often disabling symptoms." -Muhammad Ali The book addresses current Parkinson's disease issues and also details emerging therapies (DBS, stem cells, vaccines, gene therapy, optogenetics). Okun masterfully breaks down all of the science into an easy to follow and pleasurable reading experience. Parkinson's Treatment: 10 Secrets to a Happier Life is available in over 20 language translations, and also in an audio version. Dr. Okun has truly helped thousands of Parkinson's disease patients and families discover the core values necessary to achieve happiness despite living with a chronic disease.
Call Number: 616.833OKU
A Parkinson's Primer by John M. Vine"John Vine says he wrote this book for people who have been newly diagnosed with Parkinson's disease. Well, I was diagnosed 24 years ago, and I still learned something new on every page."--Michael Kinsley, Vanity Fair columnist and author ofOld Age: A Beginner's Guide Here is the book that John Vine and his wife, Joanne, wish they could have consulted when John was first diagnosed with Parkinson's disease--a nontechnical, personal guide written from the patient's perspective. Relying on his experiences over the past 12 years, John writes knowledgeably about all aspects of the disease. John also interviewed other Parkinson's patients and their partners, whose stories and advice he includes throughout the book. "I wish we'd had John Vine's book when my brother-in-law was diagnosed. The book is highly informative, unflinchingly honest, and reassuringly optimistic. It's just what the doctor should have ordered."--Cokie Roberts, best-selling author and political commentator on ABC News and NPR "John Vine details, in a compelling and accessible way, his experience with Parkinson's disease. His book is an extraordinary guide to living successfully with Parkinson's, and a must read for all who want to better understand the condition. Although diagnosed with Parkinson's, my father lived an active and productive life until his death at age 94. As the book makes clear, while each patient's journey is unique, common approaches are indispensable in treating thesymptoms of the disease."--Eric H. Holder, Jr. served as the 82nd Attorney General of the United States from 2009 to 2015 "John Vine has written the best primer I've ever read for newly diagnosed Parkinson's patients and their families. It helps them cope with the shock of diagnosis, gives them (jargon-free) the scientific basics they need to know, describes the symptoms they may experience (making clear that every case is different) and catalogs the resources available to navigate living with Parkinson's. John humanizes the book by describing his own experience and that of 22 other patients and their partners. I'd urge every neurologist to have copies of Vine's primer on hand to help new PD on their journey forward."--Morton Kondracke, author ofSaving Milly: Love, Politics and Parkinson's Disease and a member of the Founders' Council of the Michael J. Fox Foundation "My husband has PD, and I devoured this book. It's wise, wonderfully readable, and, above all, helpful. Since John Vine has PD, he speaks with great authority about the challenges, both physical and psychological. If you have Parkinson's, live with someone who has it, or just know someone battling the disease,A Parkinson's Primer is for you."--Lesley Stahl, award-winning television journalist on the CBS News program 60 Minutes "This is a remarkable book describing the personal experiences of many individuals, including the author, living with Parkinson's disease. It captures the fact that although there are many possible symptoms in this disease, each person experiences different symptoms and copes with them in various ways. The thoughtful and insightful comments and coping strategies should be helpful for persons with PD, and their partners, regardless of the stage of the disease."--Stephen Grill, MD, PhD, Director of the Parkinson's & Movement Disorders Center of Maryland John M. Vine is a lawyer at Covington & Burling LLP in Washington, DC, where he is the senior member and former head of the firm's employee benefits group. He was diagnosed with Parkinson's in 2004.